The aim of the
“Patient Reported Outcomes Newsletter” edited by Mapi Research Trust is to encourage and facilitate rapid dissemination and exchange of information relevant to PRO within the scientific community
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PRO Links
The list below will help you find other sites of potential interest.
Australian Health Outcomes Collaboration
Berne Convention
CDC HRQOL Website
CDC Mission: to promote health and quality of life by preventing and controlling disease, injury, and disability
Cochrane Collaboration
Cochrane Patient-Reported Outcomes Methods Group
EORTC Quality of Life Unit
ERIQA
European Regulatory Issues on Quality of Life Assessment Group
European Agency for the Evaluation of Medicinal Products (EMEA)
EuroQol
FACT - FACIT
Food and Drug Administration (FDA)
Future Drugs
Publishers of the Expert Reviews series -delivering critical analysis in a new healthcare era
HealthActCHQ
HealthActCHQ licenses the Child Health Questionnaire and a series of condition-specific surveys to measure quality of life for patients and their families.
Health Assessment Lab
Hong Kong Society for Quality of Life
The Hong Kong Society for Quality of Life (HKSoQOL) is a non-profit making organization consisting of members who are interested in the study on quality of life. It promotes the application of informed knowledge of QOL to enhance services and policy
Institute for Health & Productivity Management (IHPM)
The premier global resource on the impact of employee health on productivity
IQOLA
ISOQOL
ISPOR
ISQOLS
King's Fund
Mapi Research Trust
Mapi Research Institute
Mapi Values
Measurement of Health Related Quality of Life - Prof. Elizabeth Juniper
Medical Outcomes Trust
National Centre for Health Outcomes Development (NCHOD)
Web site relating to patient-assessed health instruments. Includes over 6000 evaluations.
PedsQL™, Mesurement Model for the Pediatric Quality of Life Inventory™
The PedsQL™ Measurement Model is a modular approach to measuring health-related quality of life (HRQOL) in healthy children and adolescents and those with acute and chronic health conditions. The PedsQL™ Measurement Model integrates seamlessly both g
PROCLINICA
Support et Logistique pour l'Evaluation Clinique
PRO Harmonization Group
PROLabels
a unique online database on Patient-Reported Outcome -
PROQOLID, Patient-Reported Outcomes and Quality of Life Instruments Database
Information about PRO questionnaires
Qualité de Vie
French-speaking site - Information about global quality of life (health/work/social relationships)
QualityMetric
Quality of Life and Management of Living Resources
(The European Commission Community Research)
Quality of Life Resources of the American Thoracic Society
Quality of Life Research Journal
Official Journal of the International Society for Quality of Life Research
SF-36
The Quality-of-Life Research Centre
TIME
Toolkit of Instruments to Measure End-of-Life Care
University of Toronto - Health-Related Quality of Life
WHO
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